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Latest update 3
In my February update I said :-
"""My Psa has risen from 0.39 to 0.45 over last 3 months
which shows that Psa is not continuing to fall and that the
had last July and continuing ADT with Lucrin and with
continuous Cosudex from last July was not enough to stop the
from progressing. I have always feared that last year's
treatment would only delay the inevitable and sure enough,
Psa is now beginning to rise again rising.""""
The latest Psa test was 0.7 on 10 April 2017, and it looks
certain that my prostate cancer is on the march again.
The graph applies
to myself only. Anyone else may find that their Psa levels
and Pca history are nothing like mine if their cancer cell
type and treatment were very different.
Psa graph updated 13 April 2017.
The rise of Psa at far left side indicates Calypso IMRT
radiation at Epworth Hospital in July 2016 plus addition of
continual Cosudex since last July
has not killed the cancer. Before getting the additional
treatment, last year I suspected my cancer was radiation
resistant, ie, it would take perhaps
200Grey levels to fry the bastard to death, and I have only had
a total of 100grey to PG, and 45Gy to two lymph node
Cancer often defeats whatever doctors do, and not all cancer
cells are the same, and while some cells may be killed by each
survive or mutate into something harder to treat any further.
I think this cancer will continue to chase after me for the
future I have left.
My next discussion with my good oncologist in June 22
will have to deal with my castration resistant Pca; despite ADT
with monthly injects
of Lucrin, and addition of 50mg of daily Casodex pills, ie,
bicalutamide, since last July, Psa is zooming up.
My last oncology consultation was with intern oncologist instead
of the specialist doctor on 13-4-2017; my specialist was
The intern said there have been some improved access to new
My next Psa test is due 17 June. I expect about 1.5. It probably
will confirm the trend of rising Psa. But this is still LOW Psa
compared to many
who were diagnosed 8 years previously. A decision will be made
about getting another PsMa scan with Gallium-68. now
available in Canberra.
I do not know if treatment with Leutetium117 is now available at
Peter Mac for $40,000 in Melbourne, but a clinic in Perth offers
Usually, you cannot phone to find out about this sort of thing;
all inquiries must be via doctors, and at some cost, and always
to ensure that
the treatment is appropriate and does minimum harm. In other
words, before being considered for Lu117, you need to get over
of "eligibility", which may include having tried all other
treatments and you are facing death soon. I have not seen anyone
recommend Lu117 to
treat early stage of Pca like mine, which is so far
asymptomatic, ie, I don't have symptoms of pain or multiple
metastasis, and there are
no known cancer lesions in bones.
I heard LU117 was being trialed in Sydney, but I am not sure
where. My Psa graph indicates the present rate of Psa doubling
is 3 months, and
the speed of Psa increase may increase.
Since April, I phoned a relevant research doctor at
Canberra Hospital and no Immune Therapy is available in
Australia for Pca.
I searched for BAT in Australia and it is now only begun
to be trialed in USA by research doctor Sam Denmeade.
See the video at https://www.youtube.com/watch?=fwestwwRTUNo
I think I definitely qualify for Bipolar Androgen Therapy
because I am asymptomatic
and have had ADT for last 5 years which has probably
made my cancer cells generate many more receptor cells to accept
testosterone, so it can get enough to grow from the tiny amount
bloodstream despite the ADT reducing. The adrenal gland and
muscles produce testosterone, and its impossible to completely
presence in any man. BAT involves having repeated injections of
400mg of testosterone to give a high level which does not last
and this floods the much increased receptor cells in Pca,
causing trauma to Pca cells killing many cells. Survivor cells
regain their tendency
to be sensitive to low levels of testosterone so they shut down
until they begin to generate more receptor cells. Si it seems
BAT can extend
the time that ADT is effective.
During months of BAT, Psa is measured. After a high level
shot of testosterone, Psa does rise, but then in most patients
mentions, it then falls rapidly, and after a few such "cycles"
the levels of Psa go lower than at beginning of BAT. Some
patients responded with
Psa becoming so low as to be unmeasurable. One could say that
playing with testosterone levels is like Russian Roulette, but
just what else
do the doctors have to offer me? It may be more aggressive ADT
with Ezalutamide and Abiraterone, or chemo therapy, but I know
all that leads, a succession of Psa reductions then failures,
and the medicine cabinet is soon emptied after one drug fails
after another, and
finally the Pca spreads and flourishes and the side effects of
treatments become intolerable. Morphine begins to look real
Since last August, bladder and bowels seem to have fully
recovered from last year's RT, and from a double knee
replacement last February.
I have also been taking daily Flomaxtra pills to try reduce PG
swelling and constriction of prostatic urethra. During the day
when I am up and
about being busy and now cycling 100km a week, I have good
continence, and a good flow rate. But at night, when sleeping, I
am woken 6
times in 8 hours to pee, but I go back to sleep within a minute
or two. Being horizontal and not active seems to cause bladder
et all to be a
bit over active.
I suspect that that even though there are small amounts
of Pca in the lymph nodes, they would still require the same
very high amount of RT
to kill the Pca cells. There isn't any harmless way of
delivering "pencil beam" X-rays because even if
tumors are small, the beams spread out
to be much wider than a pencil. This is the nature of beam
radiation; beyond the theoretical pencil beam there is damaging
outwards 10mm to 20mm, and radiation continues on to tissues
beyond the target.
My doc said that the Lutetium 117 treatment can safely
deliver 200Gy of beta to areas where Psa is being generated, ie,
to tumor sites, and and this
most definitely overcomes any "radiation resistance", and the
beta can only penetrate 1mm beyond the molecules of Lu117 held
steady by binding
agent to sites where Psa is produced.
Trials of Lutetium 117 were underway on 30 patients with
Pca at Peter Mac last August, while I was in Melbourne. A video
of the treatment known as "theranostic radiation". The video
showed results on one patient riddled with bone cancer and with
months to live.
The initial results were nothing less than miraculous for this
patient. But I have now heard not all patients did well,
and the full results of the
trial will not be released until later this year, probably at
least 12months after the last guy was treated in the trials, so
maybe we hear
something official by next October. Time is needed before
announcements because the side effects need to be followed
It seems that when Pca spreads, it sometimes mutates into a
cancer which does not produce Psa. Therefore a Psa in a blood
test may not indicate
the activity or the spread of the cancer, and that MPsa scans
will not show where metastasis has occurred, and Lu117 would NOT
be effective because
it could not be delivered by the binding agent depending on Psa
as the target.
Back in Early February 2017, I was able to ride over
200km a week on my bike at average speed of 22.5kph.
I could still ride, but walking or working
was painful for my
knees. Weight was steady at 83.9Kg, resting heart rate <
50, and not many uneven beats. I was looking forward to having
both knee joints replaced on 13-Feb.
I had the
operation on 13 February. I spent
a week in recovery wards, then 2 weeks in rehab ward at
Calvary Hospital in Canberra.
If anyone is sick enough to have to stay a long time in hospital, then Calvary
is The Best place to be. Their ethics are excellent.
week was painful and I was allergic to Endone. I
was changed to Targin based pain relief for a total of 5
weeks. I gave up using crutches
at 8 weeks after the op. I had my first bike ride of 6km on
22-4-17, and I felt I could have ridden further. I
modified one of my bicycles to have
160mm long cranks instead of 175mm cranks to allow
pedaling with much reduced maximum knee bend. The main
problem after TKR is getting
enough knee bend and getting knees to straighten.
Being able to ride most
road bikes depends on minimum angle between femur and tibia to be less than 80
degrees. I can only just get this with
R knee. L knee
has more bend, and it is more comfortable pedaling than R
knee. I guess I will improve over time.
lost over 3Kg in hospital because
of the pain medications and hospital
food, which is sufficient for survival,
not wonderful. The Targin plus
other drugs are fairly toxic to bowel
function and probably exterminate many
of the gut bacteria essential for good
From week 3 to week 8, I
slept very poorly at home and was
slow to regain weight. But 2 weeks
after quitting Targin and have
put a Kg back on.
I was sleeping better week 9, not
being woken so often by pains. I went back to diet of mainly
vegetables with less than 100gm as
of carbs or
protein a day. It is The Only way
for me to stay well fed, keep
weight constant and below 83Kg.
I just had to learn
to walk ride a bike again. At
week 9, I could walk 1km+
I am now at
week 14, and have
continued to improve walking
and cycling. I walk about 1/2
km daily just getting around
to care for myself,
and I've been
riding 100km a week; a
typical ride is now up to
22km, on mainly flat roads
with gentle hills. The bike
I have been riding is a
speed bike with 44t chain
ring and 18t freewheel cog
on wheel which gives me a
65 inch gear which I am
pushing this with 160mm
so the gearing at low
speed feels the same as
72 inch gear with
the 170mm cranks I used
previously. This gear is
for me at age 69, but
I just slow down and
try to concentrate on
turning the pedals
right around the
circle. But after
riding say 18km
on 5 consecutive days,
knee-caps get sore,
and I need to take 2
days off bike and I am
then better when I
return to the bike.
I have also
spent time restoring
a second bike with a nice
frame using Reynolds 531
tubing. It has old Shimano
3S 3 speed hub
1980s ladies bike which
was not ridden very far,
and in good condition.
It will have about the
same top gear as I push
now, but will have
lower gears which
should allow me to
ride anywhere in
with concentration on
pedaling quickly with
should be able to
turn the 170mm
cranks OK. I
hope to be back on
my 10 speed
within a month or
rate of increase
of knee bend is
like watching a
along a valley.
Maybe my knees will get nicely better just in time for the
cancer to pull me down again.
But I ain't no quitter, and I will seek whatever other forms of
treatment are available. I see my GP in 2 weeks and oncologist
in 3 weeks
and will ask them both to find out what is now possible in
Canberra or in Australia.
Being positive for me means understanding all the
negative possibilities while sensibly taking action to extend
life to the maximum.
I cannot live forever.
Prior to 6 February 2017, I wrote.........
Weather has been succession of heat waves with over
35C, and some hot nights making it impossible to get to sleep
The spring weather has been delightful and my overall condition
has improved. For newcomers to my blog here, I had an additional
of external beam radiation therapy applied to my prostate gland
from July 18 to August 9 this year. This added to the initial
70Gy I received in 2010.
Thus total RT to PG was about 101Gy. Severe radiation colitis
occurred from August 20 to about October 30.
Side Effects. But since October, the
radiation colitis symptoms of enduring high flatulence and 8
daily toilet sessions at least has eased off and bowel
function has become closer to normal.
The result of RT has mutilated my sexual function. For
those not used to the unpleasant facts about prostate cancer
treatment, let me explain :-
All men I know who had an RP have had complete ED. One man told
me his wife could excite him to an orgasm without a hard-on.
Maybe she sucked
patiently, or more likely used a vibrating vagina toy with
suction. He would not go into details with me. All this is NOT
like the real thing, and probably
most ppl over 50 would just give up wanting sex, and complete
their partnered life without sex.
But I estimate more than in 50% of partnered relationships where
there has been no disease of sexual organs, the couple have
ceased having sex.
Nobody ever admits it though. A small % of women would seek real
sex with a whole man elsewhere and maybe get a divorce.
For those who had an RP, and no ADT, desire remains because
testosterone remains. But of course most older women's desire
and ability to have sex
rapidly dies above age 50 or earlier, so a man of 60 wanting to
do things is irrelevant. He cannot even jerk off. All men I know
who had an RP found Pca
returned and they needed a full 70Gy of PG radiation. I know a
case where one guy had the EBRT a year after the RP, and 18mths
later his Psa began
doubling each 2 months, and he is in SERIOUS TROUBLE, and will
probably need to start ADT and consider whatever else he can
I believe these sorts of Pca troubles are far more likely than
doctors like to tell you, or more likely than publications from
Cancer Councils and other Govt
I did not have RP, and had RT and ADT as primary treatment, and
after 5 years at age 66, I suddenly got fibroids in erectile
tissue, and Roger shortened by
30%. This is said to be a direct result of prolonged time on
ADT. Erections are possible, but it just points down, is ugly,
and is useless for sex. There is
no sensation of pleasure, and no ability for the build up and
release of explosive orgasm.
So, after Pca
treatment, a man has to farewell his sexuality. Suck it up Bro
! There are not many women enthusiastic about a nice black
the chemical castration of ADT, desire for company of women
remains strong, and I enjoy talking to those willing to talk.
But many of the women
I see around are quite allergic to men after their menopause,
especially if they have been divorced. A really good
relationship with a partner should not
rely on sex.
Urinary incontinence has never been a problem for me and I am
still OK now. It is due to fail at some time due to RT damage to
Fecal continence is OK, but when I feel I need to go, I need to
move very quick, I cannot just put it off for an hour or two.
The PSA graph shows the fall of Psa after RT last July to a
nadir of 0.39 last November. I have not had such a low Psa since
beginning of 2015.
I am continuing with monthly injections of Lucrin and daily
Cosudex and Flomaxtra tablets.
It is still too soon to say I got much benefit from IMRT at
Epworth Hospital in Melbourne where I received the Calypso EBRT
during July. I would argue
it is impossible to say IMRT did any good, while doctors there
would always disagree with me. I prefer evidence based medicine.
I believe the Cosudex is the main agent acting to blockade
whatever tiny amount of testosterone is in my body which is not
suppressed by Lucrin injections
once a month.
However, it is surely certain that RT at Epworth plus the RT I
had at Canberra Hospital in 2010 has done my stubborn cancer
cells no favours.
It remains to be seen if my Pca survivor cells which remain
after treatments so far will survive or whether they become more
difficult to treat
in future, and begin to dominate remaining radiation affected
tissues, and then spread or become some other form of cancer
not produce Psa and hence not be detectable by Psa
tests. There are a number of future possible outcomes which all
are quite awful.
I recently read a frightening opinion by well informed medicos
about Pca where one doc said the Pca can seed itself in bones
come alive some years later. More reading indicates that once
bone metastasis has begun, and is detectable, it means you have
only 3% chance
of being alive 5 years later.
I do not really know my cancer status; the more one reads, the
more certain I am that I am uncertain. But between now and when
Psa could measure
50 may be 3 years.
But right now, I am well enough to have a big knee operation and
put up with the battle it will be to recover and learn to walk
without pain and ride
a bike a bit further - before I die, so I can get married to
suitable woman, finish projects, get affairs in order, and leave
much less mess behind me
than do so many other ppl when they finally die.
I am booked in to attend a pre-admission clinic on 13 December
in advance of having titanium and plastic inserts to both knee
joints some time after
Before 20 October 2016 :-
Nothing much has happened to my health in the last month, except
I am still suffering effects of radiation colitis, a side effect
of having had radiation
of PG in July. So bowel habits are very irregular because the
rectum now cannot do its store before dumping routine which
everyone else takes for
granted. The condition has very slightly eased over last 3
weeks. I am now seeking a bone density scan, and an injected
drug to slow down bone
loss due to ADT which is continuing with monthly Lucrin and
Cosudex. Sleep is irregular, with 5 get ups a night, and some
nights I sleep less than
5 hours. There is no acute pain and continence is still intact.
Before 24 September 2016 :-
My Psa was 0.52 at 24 September, going down from 0.73 at 17
August, and down from a peak of 2.8 in mid July 2016.
Why did this happen?
In Early July I went to Epworth Hospital in Melbourne to have
"salvation radiation therapy" using Calypso IMRT applied to my
PG and to two lymph nodes
in upper thorax. 31Grey was applied to PG to raise the 70Grey
level applied in EBRT in Canberra in 2010 to a total accumulated
level of 101Grey.
45Grey was applied to each lymph node. There were two hospital
visits before IMRT on July 1, and July 10, with IMRT applied
twice a day from July 18
to August 9 to PG, and once a day to lymph 2 nodes.
July 1. I had a minor operation to install 3 x RF beacons
to PG to guide the Calypso IMRT to PG. A hydrogel pad of
about 10mm thick and 50mm dia
was inserted between my rectum and PG, to push the PG away so
that high intensity X-ray beams did not fry a section of rectum
tube. In previous EBRT
in 2010, no hydrogel was used, and the amount of RT used on PG
is limited by what the rectum can be allowed to withstand, plus
The Calypso IMRT has multiple beam directions, not just the 4 of
standard EBRT, and the path of beams can be chosen to avoid
radiated or those where little radiation could be tolerated. The
radiation beams are not fine beams with sharp boundaries but
have diffused beams l
ike a torch light shining. But where all the beams intersect at
the target, the accumulated radiation intensity may be 50 times
higher than somewhere
only 20mm away.
July 10. I was "measured up" and a temporary body cast
made with some sort of plastic-paper foam to allow easy and
accurate body alignment
while on the radiation table before radiation. The body cast is
not an enclosing cast; it is only 75mm high to wrap around the
underside of a body
on a flat table, and the the cast allows easy body alignment by
at least two staffers attending before RT sessions began. Tiny
tattoos were placed
when information from previous CT scans was correlated so that
for each session of RT, my body could be positioned to within
+/- 1mm of the
correct positions with laser light beams. It is important that
the huge radiation gadget knows where to aim - guided by the
tattoos and the three
"radiologically opaque" beacons which had been inserted to my PG
on July 1.
I began taking 1 Cosudex pill daily, each 50mg. I was already
under influence of previous Lucrin injections. I also began to
work on my bowel to
ensure there was no gas or shit in rectum before 9AM. That meant
continuing my vegetarian diet, but using one Coloxyl tablet each
evening to ensure
a good shit by 8:30am. It was important that I attend all
radiation sessions shit&gas free and with a nearly full
bladder to keep the PG in the alignment
position as accurately as possible.
July 18 to August 8. There were 2 sessions of RT per day,
6 hours apart, with PG and two upper lymph nodes done at 10am,
and PG again at 4pm.
A Psa test was done on July 18, but I was never told what the
result was, but I estimate it was 2.8.
My Psa rapidly reduced from estimated 2.8 at July 18 to 0.73 on
August 16, about a week after finishing RT. The RT doctor
forecast that Psa would
flare up before reducing, but that has not been observed. By 24
September, Psa fell to 0.52.
I do not think the radiation has caused or assisted the Psa
reduction, unless this is proven to be the case in future
The RT could only be deemed to be effective if I stopped
all ADT and the Psa continued to fall. I am not going to stop
I do think the Cosudex has caused most of the Psa reduction,
because whenever I was previously given a month with daily
50mg, there was a rapid Psa reduction, as shown on graph.
I cannot say yet if the large expense and trouble of attending
Epworth has resulted in any worthwhile benefit. Medical outcomes
procedures are often very uncertain, and radiation effectiveness
is still quite low.
The full answer of what my Pca status is cannot be known yet.
But I have had Pca since about 2005, with diagnosis in late
Gleason 9, aggressive cells. The treatments and dealings with
doctors has made me very cynical, and I doubt many things
After seeing that so many things doctors said were just
"Blatherations of Bullshit", I am sure many of you now know why
I am so doubtful
about doctoral forecasts and predictions. No doctor can be
assumed to be honest until time proves him/her to be have been
(( There is a huge disparity between what many well trained,
well educated, and obscenely paid professionals say and what
later after prognosies have been given. But this is REAL LIFE,
and what else is there? honest fools? people who had no
idea? at least
doctors do know more than one who'd trained in 1716. ))
I was told in 2009 an RP operation would be fine, but that idea
was abandoned during attempted surgery in April 2010. I was put
and had EBRT in late 2010, and told "this will fix you!", but in
2012 I found the RT had been quite useless, and could have been
because the REAL rate of RT success with Gleason 9 is only a
lousy 10%. ( Report from St Vincent's Hospital Sydney )
After 2 years of ADT, I paused ADT in April 2012, with Psa <
0.08. But by May 2013 Psa went to 8.0, and I was forced to
Doctors were WRONG about what they said would happen. It seemed
EBRT had done nothing to halt my Pca. Psa went down to 0.2
after ADT was recommenced, not as low as before I paused. I has
another ADT pause during 2015, this time the doctors didn't
anything; I thought, maybe good, maybe not good, and sure
enough, Psa shot up, and I re-started ADT. But the Psa didn't go
again and it began to rise while on ADT at beginning of 2016.
This seemed to indicate typical ADT failure where Pca refuses to
progressing even with testosterone suppression. But testosterone
was 0.9 last February, and higher than the recommended maximum
level of < 0.5 to starve a Pca tumor of testosterone on which
it depends to grow.
Was the Lucrin having difficulty closing down testicular
function? It seems like it was. The addition of Cosudex (
bicalutamide ) to ADT with
Lucrin starting at July 10 may be doing the main part of good.
The monthly inject of 7.5mg Lucrin is easier to take than the
22.5mg for 3 months. Costs are the same.
By April 2016, the doubling time for Psa rise became alarming.
My good local oncologist said I could go Epworth Hospital in
to have a new type of scan, the MPsa PET gallium68 scan which
has become available in last 18 months. I qualified to attend
because my Psa was between 1 and 4. Epworth had recently
imported the Calypso IMRT method from USA.
On May 2, I had the Mpsa PET with gallium 68 at Bridge
Road Imaging and results were viewed on May 3 with the director
of Radiation Oncology
at Epworth Hospital. I had an enlarged PG, and scan results
showed two distant spread spots in two upper thorax lymph nodes
"associated with the
prostate gland." The doctor said the spread spots were not in
lungs or other organ. He said these small level spots would not
kill me because I
would have much bigger problems with the main primary tumor
within 2 to 5 years. Ah, so without his RT, I'd last only 5 more
My PG tumor is aging, and probably began in 2005, but didn't
make a big Psa, so it was 2009 when Psa rose above 5. Old PG
tumors can end up
being deadly. I have no idea when the spread to the two lymph
nodes occurred, but the doc said the lymph node spread was a
tiny amount of Pca.
Hmm, and I just thought, "from little things, big things grow!"
The doc said he could offer more "salvation" radiation via
Calypso IMRT to increase accumulated level in PG to a threshold
more likely to cause
Pca cell death. He was not sure if it was possible to radiate
the lymph nodes at the same time.
I returned to ACT, booked appointments for second opinions for
which I had to wait a month. This gave me time to search online
for anything I
could find about trials of salvation RT for patients like me who
had RT as the primary treatment. I found very few cases where
the PG was
radiated a second time after Pca began to progress.
I was in a tiny minority category of patients.
I considered having a surgeon remove my bladder, PG, and seal
off penile urethra well away from outlet from PG, having both
to a stoma, then facing life with an external piss bag. The
urology surgeon who first saw me in 2009 was not interested in
this surgery for me at any
time in future despite having done the same thing for a friend
of mine, and who has no Psa, and probably no Pca cells in his
body, and he is
doing well. But my friend accepted his op because he didn't want
RT or chemo etc, and the usual long drawn out and losing battle.
I'd been radiated, and the bigger op was now not possible - too
much danger of bleeding to death.
The most common op is to remove PG and join penile urethra to
bottom of bladder. It is the Radical Prostatectomy, RP. It might
be OK where
Gleason score <6, but distance from surgery to Pca is less
than 20mm, and in many cases the surgery area develops Pca.
Therefore many who
have an RP will need to have RT and then have a long battle to
keep the demon of Pca under control, they may need the years of
ADT and chemo
therapy; the fight is never over until the cancer wins.
The surgeon said he might install a supra-pubetic catheter if my
prostatic urethra became constricted. It involves a plastic pipe
with balloon at end
inserted below belly button, and direct to front of bladder. The
balloon is expanded, has holes in it, and piss flows to a
But insertion point is just above the vertical pathway for
radiation to PG which was done in EBRT. The holes for catheter
insertion heal up rather
like the cells around a thick ring or a bone which some ppl may
insert through their nose or an ear lobe. There is always a risk
My GP has a patient who has had an S-P-catheter for years, but
for other reasons than mine. It is the cheap easy alternative to
the stoma and bag
to side, but the PG remains with its Pca liable to grow and
He did say I could try the Melbourne IMRT Solution, and getting
upper upper lymph nodes radiated in the same sessions as for PG.
I knew that he knew he could not help me much in future, and I
felt he didn't have much hope for my long term survival because
of what he found
in 2010 when he found he could not remove my PG - too much
cancer. He didn't ever tell me that. But what other reason was
I also I sought opinions from my oncologist, and from the
radiologist who did my EBRT in 2010.
None of the these three doctors in Canberra had the specialty
training or the software which could allow them to view the 3D
MPsa scans I saw
at Epworth with the top radiology doctor. The Bridge Road
Imaging service supplied a DVD with scan info, but it didn't
include the IntelliViewer
software so nobody at Canberra Hospital could view my scans any
better than I could on a PC with Windows XP, 7, or 10.
The latest gallium-68 scans give Pca patients and doctors with a
much better idea of the cancer status. Without the gallium-68,
(or choline-II in USA),
it is difficult to choose the best battle strategy. My scans
showed metastasis (spread) some years before any CT scan could
show. And by the time Pca
shows up in a CT scan, its usually way too late for treatment to
be effective. If there were too many spread spots then the use
of any IMRT or EBRT
may be ineffective because so many beam pathways would be needed
that total amount of radiation applied will cause intolerable
side effects and
damage to healthy tissues. Many small tumors mean indicate
systemic nuclear radiation or chemo therapy et all may be
Trials of systemic radiation with Lutetium 221 are
underway at the new Peter McCallum Center in Melbourne.
Trails of Actinium 225 have been done in USA. The radioactive
element is in a solution, like salt in water. There is also a
secret binding agent that
is specific for a type of cancer in solution. This clear
solution is pumped into a vein or artery and during the next
hour or more the solution reaches all
parts of the body. The binding agent binds to tumor locations
and brings the radioactive gallium ions with it, and and magic
happens; the tumor gets
a lethal dose of RT. While the radioactive ions circulate in the
blood circulation network, they don't linger so their radiation
dose to healthy tissue
is negligible. This all gives a theoretically positive outcome,
but is somewhat subject to many variables and laws of chance,
but a success is deemed
where more than 50% of patients gain many years of life
But the most sensitive scans cannot show what will happen in my
future if I am already riddled with small amounts of cancer
spread which are
too small for today's Mpsa scanning methods to detect.
If I had the same MPsa scan in 2018, it is highly possible other
metastasis sites would be found, even if all the metastases and the
PG itself had
gone into remission. There can be a point where one chases an
increasing number of targets all over the body again and again
with increasing sense
of futility and increasing expense.
Epworth Hospital must have invested heavily in bringing Calypso
IMRT and Mpsa tests to Australia within last 18 months. Epworth
is a "private hospital"
which means they charge exactly like wounded bulls, to
ensure their income from patients pays for the investments and
returns a healthy profit to
those entitled to such profit from business. The Australian
public hospitals are often starved of funds for the
latest equipment available.
Following the month long pause to think, I returned to Melbourne
at beginning of July to proceed with the Calypso IMRT for both
PG and 2 lymph nodes.
I signed what had to be signed, giving verbal uninformed consent
because the doctors could not answer all my questions.
The proposed PG salvation radiation was to be done exactly the
same way as in vented by one Dr Gary Shultz in USA. in 2011, The
of Clinical Medicine published an article about Gary's and its
easy to Google, but there are no records of any trials or
patient records to support Gary
Shultz's claim in AJCM that remission occurred in all 45
patients he claimed to have treated.
These patients had previous EBRT which had failed stop the Pca.
Gary's technique is to apply an extra 31Grey to PG with
continuing ADT and blockade
( Lucrin + Cosudex ). Calypso IMRT was less damaging to
surrounding body than the standard EBRT so the target radiation
level could be increased
by about +50%.
Only brachytherapy with many radiated inserts could deliver more
radiation to a PG than any external beams. So, Gary's
TOO GOOD TO BE TRUE. I have no idea if Gary treated
345 patients and had 45 successes, while not mentioning the
other 300 who may have died
since 2011, suffering numerous tragic side effects and recourse
to other futile treatments.
It was not unreasonable for me to ask a professional radiologist
that he provide evidence for the likelihood that what he
proposed might work.
I was forced to swallow the idea that there was no real
evidence that the Gary Shultz method worked at all, and
maybe it was no better than
the EBRT treatment I'd already had in 2010 - which did not work.
There was more blind hope than skepticism in my mind. Even if
later I find that over time it was a failure, was it not worth a
The alternatives available earlier this year included juggling
of castration methods and chemical blockade of testosterone, and
metastasis and a slow death with one chemical after another. The
Internet is riddled with postings by men who are diagnosed with
Pca, then get
treated, and a few find they really do get remission but many
then go for years living with Pca and suffering the sexual
mutilation and premature aging
of the treatments. They stop posting about about it. The ones
who continue posting are those battling on, with some having
their wives or children
posting when the man has become quite sick, and facing the
inevitable. Was I not going to go down over time?
I have been sitting on Puff The Magic Prostate Grenade since
diagnosis in 2009, and it is likely to explode any time soon.
The Medical System failed
to protect me by ensuring early diagnosis because the Australian
Psa threshold level for treatment is 5.0. It is 3.0 in UK,
and had it been 3.0 here in Oz,
I would have been diagnosed in 2005.
Despite the lack of evidence held by the top Epworth
professionals, I gave my uninformed consent to proceed.
There was a diligent team of young bright radiation operators at
the Epworth Centre. There was more than one team, and all were
busy, but reliably punctual and friendly.
The estimate of costs was presented to me at $22,000 at July 2.
I had to pay large invoices each week, without having any clear
indication of what
the items were or what the Medicare refund would be. The costs
at end of treatment ballooned to about $26,000, with some
outstanding bills still to
be paid when I get some explanation of what was done when I
discuss all the invoices with a Medicare staff member. So far,
Medicare has paid
me about $11,000. The Epworth staff said a private health
insurance fund would not have covered my costs to any greater
Not all the item numbers listed in invoices at a Private
hospitals will attract a large payment from Medicare. So when
you go to Epworth, make sure
you are flush with cash before you turn up. The sobering thought
is that this treatment in the USA would have cost $50,000, and
there would be no
Medicare funding, and the cost of a 6 week stay in USA would be
I returned to ACT on August 9, and waited a week, then had a Psa
test which measured 0.73, so Psa had fallen to 1/4 of the level
it had been before IMRT.
The doctor said I might see a Psa "flare", ie, a rise of Psa
immediately after IMRT. and then he said Psa should fall. The
Psa did not flare, it just dropped,
and then has continued to drop over last 6 weeks to 0.51 at 21
HOWEVER, I am very skeptical about whether the IMRT achieved any
The EBRT in 2010 did little to halt my Pca. ACT doctors told me
the EBRT could work a miracle. But St Vincent's Hospital In
Sydney have a document
on their website which says Gleason 9 tumors like mine have only
10% chance of being stopped with EBRT. Basically, the surgeon in
ACT who attempted
the RP in 2010 found too much cancer to proceed, then palmed me
off to the next best treatment, radiotherapy, and those guys
seemed rather over optimistic........
The ADT has been main agent to keep my Psa low.
Before I began the IMRT in mid July, I also began to take 50mg
Cosudex pills each day. Gary Shultz recommended that the daily
dose should be 150mg,
but the Epworth doctor said 50mg was plenty.
So why did they allow me to have a lesser dose than recommended
by Gary Shultz in USA?
I was told by an old lady radiation nurse that 150mg pills were
not available in Australia. I asked if I should take 3 x 50mg
pills a day.
There was never a clear answer. More BULLSHIT. Cosudex acts to
block testosterone getting into receptor cells at the PG tumor.
So with Lucrin to reduce the level of testosterone, 50mg / day
may be enough to give enough blockading. How was I to really
know? The idea behind
RT is to damage Pca DNA, and then the lack of available
testosterone prevents cell division and re-growth so Pca cells
are more likely to die instead.
Its a good common sense theory, but the reality of cancer
chemistry is far more complex, and not all known.
But older Pca tumors can grow more testosterone receptor cells
in response to lower amounts of testosterone due to ADT.
just further stimulates receptor cell production so that no
amount of Cosudex will block all testosterone to cause Pca cell
In 2010, I began with a month of Cosudex before injections of
Eligard began. This was said to give less side effects than
starting with Eligard without
Cosudex. Probably, Eligard ( or Lucrin etc ) takes a long time
to begin reducing testosterone, so docs go for the thing that
gives a quickest drop in Psa.
They may not have liked to keep me on Cosudex after starting
Eligard because it may have provoked the tumor to become ADT
resistant earlier than
it would otherwise.
I did think continuous Eligard plus Cosudex may have been better
after April 2010, but now think the ADT failure now seen would
have occurred sooner.
ADT does not ever cure Pca, it merely slows it all down for
awhile, in my case, by about 6 years.
Before 2016, the only time I was given Cosudex was at the
beginning of ADT ( Eligard or Lucrin) to "lessen side effects"
of ADT for a month before
commencing ADT. Not a word was said about what Cosudex actually
did. But it has always caused a rapid initial fall of my Psa,
and most of what
I am seeing now is probably due to this chemical.
I missed the monthly shot of Lucrin for July. However these
monthly shots have at least a month of overlap if you miss an
Whether the IMRT has worked at all will become obvious in years
ahead if Psa continues to fall, and especially if I have stop
the ADT with Lucrin
and blockade with Cosudex.
The latest Psa graph update shows a rapid decline of Psa level
between 18 July and 16 August. Between 16 August and 22
September, about 5 weeks,
Psa fell from 0.73 to 0.51 in 37days.
Therefore the "Psa halving rate" is now 64 days, about 2 months.
If that trend continues then in 6 months after 16 August the Psa
may be 0.1, in
February 2017. If Psa rate of fall was linear, Psa would be zero
by some time in January 2017. Cancer is a disease that can rise
2,4,8,16,32 because cell numbers double after a time period. But
I doubt the rate of decline of cancer cells cannot even be
predicted, although some
cancers cease their existence abruptly when surgery succeeds to
remove all of it.
I gave up all alcohol in July 2014 and I see NO REASON to
break out champagne to celebrate a win.
So, forecasting future Psa level can be an irrational form of
stupidity. Nobody could ever make any reliable forecast. In
another month my Psa may
well begin to rise again without me having much way to stop it,
apart from chemo therapy, and while taking measures to better
manage the suppression and
blockading of testosterone.
For the first two weeks after my return to ACT after the 5 week
"Medical Holiday", I thought I had escaped sustaining radiation
side effects. But then 2 weeks
after treatment, WHAMMO, I am hit suddenly with severe diarrhea
and my bowel producing large gas and mucus flows and
uncontrollable bowel irregularity.
I've had 2 weeks of fecal incontinence and "explosive shitting
events" where I filled underwear with poo while rushing to a
toilet. The usually good rhythm of
bowel has gone, and my rectum seems badly affected by radiation.
There are warnings in literature about EBRT. There are
side effects, and I had them all, but not as badly as some other
fellows. Epworth offered protection
against side effects to rectum by the installation of a hydrogel
pad between rectum and PG. I am having much worse bowel
troubles now than I had after the radiation in 2010 after the
EBRT. So was the hydrogel inserted properly? Methinks the doctor
who inserted 3 RF beacons to my PG and the hydrogel needs
to much improve his methods. I will not say the word
incompetent. It remains to be seen how well I recover in coming
weeks and months.
My condition is now being monitored by my GP and whoever else
may help, and it seems I am suffering severe acute colitis after
radiation. Google is full of
information with videos about this terrible condition which
could go on indefinitely. Just what may possibly be done to
alleviate the effects quite unclear so far,
but I probably will have to be seen by a gastro doc. I am not
bleeding much, but continue with little regularity some pain,
and discharge of gas and mucus.
Stop rolling your eyes, all this may happen to YOU.
The literature supporting Calypso and the use of hydrogel may be
misleading. However, probably the hydrogel does lessen the side
effects to rectum.
If you seek similar treatment to what I just had, assume you
will sustain WORSE side effects than the doctors indicate may
occur. Usually they fob off
everything you say, avoid all difficult questions. They just
want you to accept treatment to keep their income coming in.
I do not know if the bowel damage sustained at Epworth will be
permanent. There have been cases at other hospitals around the
world where much worse
damage to bowel/rectum has been sustained despite evidence
suggesting that damage would occur.
I read of a classic case in Sweden in 2003 described by caption
"how not to do radiation". They just repeated normal EBRT like I
had in 2010, and over half
the patients endured the problems with fistulas forming where a
rectum wall ruptures and shit exits into perineal cavity and
with bleeding and infection
and pain. Such bowel/rectum damage can only be fixed by removal
of large section of bowel, formation of a stoma so an external
shit bag can be worn.
Radiated tissues in this operation have to be avoided because
once cut, they do not heal and may bleed for days or weeks. And
the article said there was
not much remission of Pca.
Before going to Epworth, I was still having occasional bleeds
from rectum as a result of EBRT in 2010. These bleeds were
bright red arterial blood which
occurred if the shit was lumpy. There was never more than half a
spoonful. The bleed lasted only seconds. In 2013, a
specialist gastro doc could not find
the bleeds were coming from during a colonoscopy in 2013 to
check for bowel cancer. He had thought I had piles, but none
were found. I met a bloke at
Pca support group who went on a world cruise after EBRT, and he
bled cup-fulls of blood. So he surely had a "bloody holiday",
and I guess it was a
voyage of worry for him and his nice supportive missus.
A week after I began IMRT on July 18, I needed to get up at
night to piss up to 7 times. I began to need to take a nightly
Tamsulosin pill aka Flomaxtra to
reduce PG swelling and resulting constriction of the prostatic
urethra, making pissing slow, and laboured.
I continue taking a Flomax pill each night since I began
treatment to get a better sleep. The bladder seems to have
survived. I still can stop or start flow at will.
But experts say that the control I have now will reduce to
complete urine continence because of long term radiation damage.
The radiation doc told
me the May scan indicated my bladder wall muscle has much
thickened because of its extra work over last 7 years to squeeze
the piss through a reduced
size of prostatic urethra. Once my bladder decides to squeeze, I
need to get to a loo fast or the sphincter control is
insufficient while trying to stop the pissing
with pelvic floor muscles. Keeping a piss bottle handy when not
close to a toilet is completely sensible !! I spend 95% of my
time alone, and there is
nobody such as a fussy wife to become upset by seeing an old man
easing a problem in a practical manner.
I have a date with a continence nurse soon to discuss better
ways to manage degradation of my bladder and bowel function by
On July 1 I had the gel inserted and 3 RF beacons
inserted to PG tissue using some kind of applicator tool and
guided by ultrasound. The beacon position
in the PG is somewhat critical to ensure the beacons can give
the right information to guide the IMRT Varian machine using
If the PG position moves during IMRT, the beams follow the
moving target - in theory - and just how successful this is
anyone's guess. The beacon
applicator tool was never described to me, but it was a
"transient" procedure, and doc cited difficulty with the tissue
hardness of my PG. I felt I was among
fools who blamed me or their tools for their difficulties.
The beacon implants and gel insert was done between 12noon and
1pm, Friday 1July. Because I was unaccompanied by a partner or
carer, I was
compelled to stay a night at Epworth ( at a cost of $860 I later
found ). I was not permitted to just go back to a hotel room,
which was normal for other
Calypso IMRT patients who were having IMRT following an RP. But
it turned out to be necessary for the night's
At 8pm, 7 hours after beacon implanting, I could
not piss. I dosed off, and at 2:30AM I remained blocked. I asked
the ward nurse to phone the doctor
about what next. The male nurse spoke poor English and seemed
incompetent and un-communicative, inspiring no confidence in me.
But the phone
call occurred, and it worried the doc who had done the beacon
An intern arrived at bedside with a catheter, another poor
English speaker, and he was very nervous about what he had to
do. I had to calm him down, and
prevent over eagerness to push catheter lest it rupture my
urethra somewhere. We got it done OK, and I have NO APOLOGIES to
anyone for being quite
SURLY about it all when I wasn't trying to calm upset middle
aged male nurses easily offended, and from Philippines or south
America, it seemed.
No pretty girl nurses in wards at 3AM, no specialist doctors
The catheter was pushed through a soft blood clot which blocked
the prostatic urethra. The bleeding continued for some hours
with blood seeping
backwards up into bladder. I spent a second day at Epworth (
another $860 ) until they were happy for catheter to be removed
and bleeding had
subsided enough for me to be "sent home", ie, to my lodging at
Ryder Cheshire, a place run by a charity entity.
The cause of bleeding was never fully understood by docs.
They admitted nothing. I figured blood from within cut prostate
tissue with beacons had
found an exit pathway via sperm ducts to the prostatic urethra,
where it was able to pool and form a clot and urethra blockage
to stop urine flow from
bladder to penile urethra.
The catheter must have pushed through the blood clot, and urine
mixed with blood flowed out immediately. More blood may have
flowed backwards to
bladder from bleeding prostate to bladder and around the outside
of catheter. I did not bleed from penis while catheter was
inserted. These details were
not understood by the doctors.
I did get a visit
from the insert doc on morning after blockage who said he
did have difficulties, and that I was THE FIRST patient to
be having salvation
radiation after having had only EBRT as primary treatment.
The removal of catheter was without
pain, and I was allowed to leave to go back to my lodgings at
Cheshire-Ryder Homes on the Sunday after the
Friday operation. During the next 10 days up to July 10 when I
was due to begin RT, I was able to email doctors to question
their methods. During the first
week my emails with doctors indicated they did not know whether
they had punctured my bladder or punctured my prostatic urethra
or both while trying
to insert the 3 RF beacons. Without spelling it out, the doc
inserting beacons could not see what he was doing.
The Ultrasound image maker used to monitor such things was not
letting him see clearly. So he was stabbing in the dark.
On the second morning of my hospital stay, another doc arrived
to chat. He said he had done 1,500 brachy-therapies, and he said
less than 1 in 60
patients had bleeding problems and that most of those were like
me, from interstate, and he didn't know why. Nor did I because
such info was just irrelevant
bullshit; why was he there? why talk to me? what magic thing was
he going to do to alleviate my problems? - nothing he could
But, brachy-therapy patients can have up to a hundred
radioactive needle size inserts injected into PG with a special
tool, less than 2mm dia, and all the
little needle stick injuries all heal within a day because they
are still mainly healthy, and heal up before the radiation from
inserts affects them.
Brachytherapy can deliver 150Gy to PG, and with fewer side
effects to bowels or rectum, so it has been the best RT
available. But once PG has been given
70Gy from EBRT, or more from BT, then later the PG blood vessels
will not heal quickly if they are cut by any surgical procedure.
The BT radiation is known as the best type to have. But it is
more expensive, and in 2009, was not available for me as far as
I knew. No doctor mentioned
I should get it. Besides, its only radiation, and with a Gleason
9 tumor, the chance of it working was only 50% - maybe. I was
told to have EBRT, it was
supposed to be as good, but it just ain't, and later I found St
Vincents's Hospital in Sydney has literature at their website
which says the probability of
Pca recurrence after EBRT for a Gleason 9 tumor was 90%.
Brachy therapy BT may have been marginally more effective than
EBRT for my high grade tumor.
I explained to both these visiting docs that success of
interplanetary space missions depended on rocket scientists
having to investigate every possible
way shit can happen. I'd been previously well radiated, and
both docs didn't see that I was probably 100% likely to bleed,
and I was not in the category
of the 1.66% of BT patients who bleed after BT insertions. I
suspect the hospital charged me for the unwarranted unwanted
chat on Sunday morning.
Most docs are not driven by charity, and the Sunday doc must
have been curious, maybe informed by other doc. And my payments
to Epworth paid for
his curiosity. The 2 days in hospital because of bleeding cost
$1,700, with none reimbursed by Medicare.
After being told I was the first patient for re-radiation and
this made me realize I was nothing more than a laboratory
rat for docs to experiment upon
without ANY useful info from the USA doc who recommends this
process. If the docs want my respect, they must earn it.
I left the Epworth Free Masons ward on Sunday afternoon July 3
and settled in at lodgings run by Ryder Cheshire which is an
which has volunteer workers only, except for one lady who does
the books for a total of about 50 one bedroom apartments with
two beds for the many
ppl from faraway regions of Victoria and NSW. Maybe there were
40 ppl staying, with many cases of breast and prostate cancers.
place allows allows patients and partners or
guardians / carers to have cheap lodgings for a typical stay of
6 weeks. One woman had had 29 courses
of radiation, others had lost a lung, or were in a much worse
position than myself.
THAT was humbling.
I walked a kilometer to shops for basic groceries, and knees
felt very sore, and I was still bleeding from dick a bit
from minor op 2 days before.
I had another week to wait before being "measured up" before
another week of radiation planning. Those first 2 weeks of my
stay at Cheshire was
very pleasant, and there was a mobility scooter available which
I used to go to shops, and to a fine Lebanese restaurant, the
Gorgia Cafe in Ivanhoe
which became my daily eatery for the 2 weeks where there was no
They had Wi-Fi, so I could email the doc to ask so many
questions about why I had bled. I asked what evidence supported
the claims by Dr Gary Shultz
in USA. The bleeding kept going for a week, and I do not know if
I bled from incision entry point for beacons into the perineal
During the 2 weeks with no radiation, I asked more questions and
ended up asking the radiation doc to email Dr Shultz to find out
more. He sure was not
going to do that. I said better methods are needed for placing
RF beacons to avoid damaging or cutting things like bladder or
prostatic urethra during
injections. I said he will have other patients like me so he
needed to be ready with improved methods. It is possible he
totally ignored all I typed.
He ended up admitting there was no information available
about Dr Shultz's patients and that I had now been fully
informed and that was that.
In other words, there was no supporting evidence that the RT he
offered was much good at all. Hence I had given my
uninformed consent. We both
knew it may not work as planned.
10 days after the minor surgery, I did try to visit an aquatic
center near my lodgings to swim a bit, 400M, and I bled again,
so I gave up all silly notions
of doing any exercise while in Melbourne.
The radiation treatments began on 18 July and were
completed on August 9. At 10AM each day I had IMRT to PG and to
upper chest targets.
At 4PM I had a second round of IMRT to PG only. I filled in time
by doing web-page work with my laptop. There were 4 radiation
staffers and 2 nurses
in an office who had little to do with me except to lecture me
about having a gas free and shit free rectum. They managed to
give me enough potty
training to always arrive gas&shit free for RT, and with
500ml of water in bladder. After return to ACT, I have had 3
brief emails from the head radiation
doc asking about my bladder and bowels. All was cordial without
me bashing the man with questions was never going to answer. He
must have winced
when he tried to read the screen fulls of history and
suggestions and about my terrible fecal incontinence. I doubt he
read much at all.
I am not officially in his care any longer, and there's little
need to contact him. He may read this here.
A week after I returned to ACT, I climbed back onto bicycle. No
more bleeding. The entry point for surgical gadgets under crutch
had healed OK - not radiated.
I was able to increase distance and speed, and I regained my
fitness levels close to what I had in mid July before the
Melbourne trip. But I did notice that
I breathed more heavily riding uphill, and there has been some
damage to lung tissue. The doc did say I might have some
difficulty swallowing and a sore
esophagus, but I had neither. I seemed to burp more and suffer
some slight indigestion. Appetite has remained good but since
August 9, and increased bowel irregularity has not stopped me
eating the same vegetarian diet. However, I like to make my
salads with green fresh green vegetables which i can heat in
microwave to make them more easily digested. There is no need
for so much raw food.
Weight has bounced down a Kg while in Melbourne, then up 2Kg,
then down again, as irregularity manifests itself with erratic
disposal of bowel biomass.
Once past the acute irregular shit-in-pants events, I now have a
regular form of irregularity, with rectum not happy with
handling shit, and wanting to spurt
mucus and gas at least 10 times a day.
My resting heart rate in mornings is 50, up slightly from the 48
last July. it takes more time for HR to go lower even after
short rides. I have a pain in the
lung on right side, similar to having cracked rib some
years ago, so I assume I have poorer lung function, so heart
beats faster to get more blood around
to be oxygenated at the lower rate. So the Melbourne treatment
had a slight worsening effect on my cardio vascular health. I
was told the two distant Pca
spots were in 2 lymph nodes. Their position looked like they
were in my lungs. I have ZERO idea of exactly what was radiated
in upper thorax; the machine
is able to gain enough info from scans to aim at whatever
volumes are on scan without any other tests able to proove that
indeed the spots were at lymph
nodes, and not within my lungs. So I can only cross my fingers.
I am just a dumb ( and irritating patient ) who just cannot
trust the education and
experience of doctors unless they proove they know what they are
doing. The world is full of well educated fools on good wages,
and beyond anyone's ability
to scrutinize their efforts. Shakespeare wrote many plays about
powerful blokes and sheilas who were were so flawed......
Last February, I joined the the waiting list for two new knee
joints at Calvary Hospital in Canberra. Walking further than
100M has become painful, and
scans in 2014 proved I need two new joints, all propelled by the
crummy genetics I inherited from my dearest mother's genes. She
hated all vigorous
exercize, and I never ever saw her raise a sweat. She did like
to swim, and I watched her extremely slow motion in a pool where
I took her when she was 73.
She got through to 98 years of life as a mindful plodder, an
attribute we both had. She had few athletic attributes which
allowed others to do twice what
she did. I am much the same, but I inherited my father's zest
for exercize; he set a schoolboy record for The Mile in about
1924, and rowed well for the posh
school. He was always ready for real stinky sweaty work for real
men and I often helped him eagerly with the work around the
house and at his vet practice.
But he neglected a melanoma on his leg, and he died at 60.
If my cancer continues to outwit the doctors and I need chemo
therapy, I won't get those new knees. The waiting list was 12
months, but Calvary contacted
me for pre-admission in mid August. I told them I needed more
time to allow doctors to decide if I was likely to have a long
remission time and hence
allow the knee surgery. It would be extremely pleasant to be
able to walk 800meters to the local shop and, and that would
greatly help my health and help
reduce bone density loss due not using legs walking. I could
also ride a lot further, and I can say I would be most eager to
do all the rehabilitation needed
after knee surgery.
During time in Melbourne, for weekdays with radiation there were
cars provided to get patients from Ryder Cheshire to several
hospitals, all driven by eager
volunteers between 55 and 70. Ryder Cheshire is about 10km away
from hospitals in Richmond. The private hospitals' policies give
local transport to
the sick coming from all around Victoria and NSW. It helps make
the big services of big hospitals available to those in remote
regions without the stress of
getting around in a big city. There were some spirited
discussions every other day on the 1/2 hour drives from "home"
to the hospitals. Most patients had only
one radiation session per day, so they were driven home by the
volunteers before lunch. I was the only one getting two
radiations per day, at least 6 hours
apart, and Epworth Centre staff gave me taxi vouchers for a free
ride home in slow peak hour traffic which cost an average of
$33. It meant I did not have
to walk in pain on bad knees. For those who can walk, there is
also a good train service from Ivanhoe to West Richmond station,
300 meters from the Epworth
center. From a station at Ivanhoe, bus 548, which reduces 1.4km
walk from station to Ryder Cheshire to 300M. There are also
taxis from station to Ryder.
I may have had to stand while using public at peak hour times.
Epworth did not charge me for vouches worth a total of about
$660. They still probably made
a healthy profit from the total of $26,000 they charged me. I
would not be surprised.
Ryder Cheshire refused to take a cent from me for the
accommodation. They didn't seem to know what rate to charge me,
which depended on whether
Epworth would pay them, at a higher rate than they felt they
could charge me if I paid direct, ie, $20 per night for 31
nights. I suspect Epworth did pay them,
and paid $38 per night, and the Epworth accounts had no item for
accommodations. I have no idea who paid who, but probably the
are buried in the invoices from Epworth. I filled out forms to
claim for ACT Government assisted travel expenses. I never heard
a word from ACT Govt, for
this little used service. The accounting of costs at Epworth
seemed unclear, but Medicare staff in Canberra said all was well
with their charges.
I gave the Ryder Cheshire a donation of $1,000 before I left. If
I'd had to pay for a Hotel at $100 per night, If have paid
$3,100, and not had access to the
daily transport to hospitals, and not had a tiny bedsitter flat
to cook in, my costs would have been far higher. If I ever need
to get medical treatment in Melbourne
again, I'd want to stay at Cheshire Ryder. It is a lovely simple
old fashioned place to stay with ppl about who have troubles
Before my Melbourne treatments a gentleman emailed me to
to describe his IMRT which followed his RP some months before at
to which I went. I'd met Paul online in 2004 I gave him details
for a component he wanted to make for an audio amp he was
making. We still share an
interest in DIY Hi-Fi technologies. His descriptions of what
happened to him gave me confidence that side effects for IMRT
might be minimal, and that
radiation treatment itself was quite tolerable, and that the
hospital staff were very nice. Most of this turned out to be
After his RP, his Psa went very low, then began to rise. He then
had the surgery site radiated using Calypso IMRT, and Psa went
down again. I met him
in Melbourne and had dinner with him twice.
But some months later, his Psa is rising again, showing that Pca
is progressing despite all the surgery and RT. Because his Psa
went so low after the
treatments, it was unlikely there were metastases somewhere.
When Psa does not decrease much, it could mean there is Psa
coming from a metastasis.
I'd say he will have to go to ADT, and probably he may suppress
his Pca for some years like me, until the Pca becomes castration
resistant which is usually
I began with PG that was NOT removed because the doctor said I
had an inoperable Gleason 9 tumor which had slightly escaped the
PG capsule- a monster.
Paul will live many years yet, and probably more years than I
will, and I'm 10 years older, and much more likely to go down in
5 years, before any
magic cure arrives.
Subscribe to this site for continual emails of latest progress
in research and drug trials :-
Psa level between age 40 and 60 indicate lethal Pca in later
If Psa is above 1.0 at age 59 there is good reason to
Before 29 May 2016.
My prostate cancer progress presents a bigger battle in coming
months. All those people who said I would get better and that I
didn't have anything
to worry about and that alternative therapies would work WERE
ALL WRONG. Today I cycled 45km to give a total of 136km for the
Weight is 84.2Kg, resting heart rate = 52 bpm at 1 hour after
the ride, 48 bpm this AM, and nice steady beats with no double
beats or missed beats.
My vegans diet is continuing, and I have to be honest, its 95%
vegans because I do allow low fat milk for my tea, and 150 grams
of salmon from fish
farms in Tasmania. I quit all coffee 2 months ago after
realizing it contributed to feeling too hyper after 3 coffees,
and probably caused a bout of
uneven fast and slow HR just after last X-mas. I've been on ADT
aka HT to block my testosterone production since 2010, so 6
years now, and I had
an eight month pause in 2012-2013, and again last year 2015 for
5 months. After both pauses the Psa shot back up. Since the last
pause and after
recommencing HT last August 2015, Psa went to a low of 1.0, and
then began to rise to 1.5 by April 2016. Its now 2.3 so it is
doubling each 4 months,
fast, and HT with Lucrin injections is not able to keep
testosterone below 0.5 for adequate suppression of testosterone,
hence Psa is rising, and Psa
would be 128 in 2 years if nothing is done about the
situation.Before 4 May 2016 I could not find any available
trials of new treatments in Australia.
But when I last spoke with my good oncologist he suggested I go
to a Melbourne imaging clinic and consult with a Melbourne
radiologist at Epworth
Hospital. These together offered the new benefit of an MPSA +PET
scan which shows my cancer status and is a guide to choice of
radiation using the Calypso IMRT method :-
Calypso seems to be the best way to deliver RT to prostate
tumors with much less damage to surrounding organs or bones. I
had previous EBRT in
2010 with probable radiation levels of 65Gy, with some side
effects on bowels. The proposed Calypso IMRT uses computer
program and implanted
RF beacons and hydrogel to much reduce side effects to bladder
There are online articles on Calypso such as....
There are plenty more, and these may confuse patients and make
them anxious unless you are a naturally scientifically minded
person like myself.
I also found a video suggesting IMRT was no better than older
But I think the IMRT is a much better way to deliver RT for me.
Doctors like to tell us to stay away from Internet which makes
us anxious and confused,
and just rely on their learning and experience. But much of what
many doctors told me made me anxious and confused.
The anxiety and confusion did not last long in my mind because
usually what the doctor says agrees with what I find on the
Internet, and I have a rational
mind. Many modern clinical treatments have been developed over
many years of trials which have been regulated by government
But regulated systems don't always keep patients safe. For
example, I should have had a biopsy when Psa reached 3.0, some
years before my Psa
climbed to 5.0 when the Gleason score had increased to dangerous
9 and Pca tumor was inoperable !
But the fact remains that modern medicine does more good than
harm, and I would be dead now without the treatment I have
had.But despite all the
modern wonders of treatment, prostate cancer manages to kill 33%
of men diagnosed. It is highly likely to kill me because I was
diagnosed too late,
even after having regular Psa tests, and then finding I had a
Gleason 9 tumor with aggressive cell type.
The doctor at Epworth Hospital is the first doctor who was happy
to email me with with considerable information. The IMRT he
proposes does seem
safe to me, it means 31.2Gy are to be applied in 26 sessions
over 3 weeks, which in theory raises total radiation for my PG
The doctor supplied a paper published in American Journal of
Clinical Medicine, Fall, 2011, Page 170, where one Dr Gary
Shultz claims he gave
repeated RT to 45 men who ALL had a positive outcome, ie, Psa
began to fall.
I am seeing my good oncologist on 31 May, and my urologist on 8
June, and I will also see the radiologist who did my EBRT in
2010, on maybe 14 June,
to discuss the following :-
1. Details of small amount of Pca spread to 2 lymph nodes in
2. Permissible maximum amount of accumulated radiation to PG.
3. Case histories of patients with similar Pca progress who have
had two repeated courses of RT.
4. Possible side effects of bleeding from blood vessels of PG,
5. Possible dysfunction of prostatic urethra, including
disintegration, or stricture, interfering with urination.
6. Possible alternative surgery involving removal of bladder, PG
and formation of stoma to allow ureters from kidneys to drain
to external plastic bag. ( 40,000 ppl in Oz wear bags for body
waste due to cancer or road crashes et all, and they have a good
7. Whatever else they tell me, or what I forgot to include here.
I learnt much from Internet from research hospital publications
online, Sloan Kettering et all. Doctors have yet to get rid of
my prostate cancer, and
quite a number of treatment plans did not work despite their
best intentions and predictions, and to me, not reading the
Internet would be like poking
my head in the sand. Am I not entitled to get my info from the
Internet just like doctors? The new PMsa scans have become
available in last 12 months,
and are on trial in Oz.
It seems the supply of patients for a trial are supplied by a
referring doctor, so I probably had no chance of getting into
any trial without a doctor's referral.
My local Canberra oncologist and radiologist both said they had
referred patients like me to hospitals in bigger cities such as
Sydney of Melbourne where
a bigger range of specialist services and treatments are slowly
becoming available. My local oncologist said patients he sent
away to Melbourne were
helped, but not exactly how many or how their life improved, so
I am yet again left to assume there may be some increased
lifetime and there was no talk
of a cure or remission.
I am sitting on my Prostate Grenade, and while its growth
activities have been slowed by HT, it does not mean it will just
die and fade away.
It will slowly swell up and try to choke my prostatic urethra
which will slow my flow to a dribble and affect my kidneys. If
left alone, it will evolve to
become a worse form of cancer which is more likely to spread in
a rush - the grenade pin falls out, and floods my blood stream
with Pca, and
overwhelms my immune system. The proposed IMRT is the Last
Chance I have to intervene with available treatment in Australia
afaik. If this treatment
fails, then I will have to begin chemotherapy, not something
anyone can look forward to.
The expense is minimal for the PET scans and course of
radiation, and there are costs for travel and accommodation. Not
much of all this is funded
For 2 days in Melbourne to undergo scans and re-diagnosis,
return air fare was $432 aud with Virgin, a small room at a
Quest hotel was at $150 a night.
On return, I found cheaper accommodation for $80, which I may
use in future. Some of the costs of traveling outside ACT for
medical treatments may be
paid by ACT Govt. There is a special claim form, not much
publicized, and without mention of funds for air fares.
On Monday 2 May, I had a CT scan with radioactive iodine.
Then I was injected with special solution which is able to bind
Gallium 68 isotope to places where any Psa is being produced. A
PET scanner used to
produce the PMsa scan which tells doctors and myself just where
Psa is being produced now, something nobody has known since
2010. The scan is said
to be far more sensitive than a CT scan and very low amounts of
Pca are seen. The main source of Psa is the primary tumor at PG.
On Tuesday 3 May, the radiologist said the PET showed no Pca in
bones, bladder or bowel, rectum, but there were two small
amounts in two upper
thorax lymph nodes. He said these would not be a major problem
and would be fixed after the main primary tumor has been
radiated. I will need to
examine the follow up carefully. Before being sent to Melbourne
I didn't think any more radiation could be used, but it seems I
The Melbourne doc said it could be at a higher dose than the
original in 2010. Just what that means wasn't clear, was the
total accumulated radiation
to be higher? By how much? My research on Calypso tells me IMRT
with 81Gray levels are possible, above the probable 65Gy levels
of 2010. So was the
total radiation level to be increased to 146Gy? I searched all
over the net to find what was the maximum safe level of
radiation by X-rays for the prostate
gland. Many other parts of body were given nominal maximums, but
not the PG. I assumed 81Gy. The doc sent me the .pdf showing
treatment by Dr Gary Shultz.
It tells us the IMRT applies 31.2Gray to PG, and when added to
say 65Gy with the normal EBRT the total = 96.2Gy. The EBRT in
2010 wasn't a high enough
level to halt the tumor growth, but must have caused some
damage, and there has been some recovery, or healing, so the
31.2Gy now proposed may be
well tolerated by healthy tissue, but maybe not tolerated by
It is assumed healthy tissue will always survive radiation
better than cancer cells. The cancer growth depends on a good
blood supply which it extends
for itself to do well. Methinks some cancer is could be much
more robust than healthy tissue, and unless all blood vessels
are destroyed by radiation, and
surrounding healthy tissue as well, maybe then the cancer might
just give up.
Any simplistic explanation of how radiation or chemo actually
works is likely to be BULLSHIT.
The original EBRT I had in 2010 used old machines with beams at
only 4 directions, each session gave 1 shot vertically up, 1
shot vertically down, and 1 shot horizontal left, 1 shot
horizontally right, with no regard for where the entry and exist
beams went, and with poor dynamic control of beam direction
to prostate, and unknown beam shaping to conform with shape of
PG seen in accompanying CT scanning. PG can vary up to +/- 6mm
due to breathing,
and bowel content movements. Therefore beams are allowed a 10mm
margin exceeding the shape of PG, and this means the rectum
walls cop a large
dose of RT. I was expected to drink plenty water before each
session to stretch bladder to keep more of it away from
The Calypso method allows calculation of the best beam
directions at many angles all worked out on a computer prior to
the radiation. The intensity of
radiation is variable and beam direction is locked on to
tracking information from implanted RF beacons within the PG.
Hydrogel is inserted between
PG and rectum and I assume bladder as well to nudge these
adjacent organs 12mm away from PG, So the beam control uses a
much more sophisticated
computer control program, a benefit of progress over last 20
years, and thus offers less side effects, and raises the amount
of RT allowed to be given to PG.
The hydrogel hardens to being like rubber immediately after
insertion, but dissolves away during 4 following months. Its is
said to be entirely inert, and
safe to use.
I don't expect very much additional radiation damage to what I
have had already, except to prostatic urethra, all nerves, and
thus may bring incontinence.
The doc said the IMRT can be over a week, or 3 weeks. The week
of RT suits those wanting the cheaper cost, and shorter
accommodation, and less
time off work. Being retired, the longer 3 week time suits me,
and doc said the longer time gave slightly better results. He
said there is a chance
the Tumor Cells Will Be Exterminated. A bit like a Darlek in a
Dr Who episode.
Well OK, sure, but all exterminated? will some just modify
themselves into something worse? It is cancer we face, and it is
real good at making a fool
out of many doctors.
A Psa test 6 weeks later would tell me and my doctors who are
all interested if the IMRT has done anything. Psa is supposed to
decline. The worst
outcome would be a rapid rise in Psa. I'll remain on HT, maybe
monthly Lucrin shots, and Cosadex.
I have provisionally agreed to go ahead. The doc in Melbourne is
happy to do the RT if my other doctors have faith in what
is to be done, and of
course to get to see all the doctors I had to book appointments
and get around the waiting times of up to a month before my turn
There are hundreds of other patients, some in greater need than
me. And I have to wait for one doc to return from time off, and
a break a week after I see him. So unless you get busy to talk
to these docs, then expect almost no co-ordination or concern
Just make sure you are polite, not ever surly, doctors and
specialists are not God, they are just men or women, and you
must make do with
whoever is around and I believe this approach leads to the best
evidence based treatment you could have. The oncologist didn't
Calypso IMRT was about when I mentioned it. After dealings with
me he will learn just what is on offer; I very much like talking
to my doctors,
and I try to bring then a concise list of my concerns.
Because there is some Pca spread to lymph glands I will have
chemotherapy at a later date, maybe in 2 months time. Nobody
knows what might work,
or what combination of chemicals might work. Many chemicals
merely delay the the end game a few months, but in some cases it
gives years of life.
There are chemo drugs such as abiraterone, enzalutimide,
taxotere, cabazitaxel, etc.One solution might be the to removal
of bladder, PG, and sealing
off penile urethra. Then the two ureters from each kidney are
brought together to make a join to a hole at side of lower
abdomen for external urine bag.
But because my Pca has some slight systemic spread the surgeon
may feel it is a pointless exercise. I know a guy who has been
through this, he's
lived happily onwards after this op and gets jobs done around
the house and his wife still loves him.
Many websites are a cause of confusion and anxiety, but I found
this from the UK...
The PET scan showed my bladder is not happy. The bladder is
muscular bag with walls normally 3mm thick to expel urine with
an easy squeeze to
get urine out along well sized tubing with few
restrictions. But in my case, the urethra in PG is being
strangled making it harder to expel, so the bladder
has built up its muscle thickness to 10mm. I don't realize the
effort it makes and nothing is painful, unless I delay getting
to a loo.
I told the Melbourne doctor that men should be able to have
their PG removed before cancer spoils their fun, and before
cancer makes it impossible
to spare nerves. But he said no 25yo would want this, but I said
many over 55 would much like it, and they are usually able to
afford it. It is rich old
men who fund old men's cancer research and treatments.
But prostate surgery often leaves a small number of Pca cells
behind, or healthy PG cells which will develop Pca later if the
DNA allows it.
I know about 5 men my age well enough to know their Pg
condition; all had surgery, and all had Pca return, and all had
with RT. Some had HT, while others didn't, so the HT was a spare
weapon up their sleeve if the Pca progressed.
One friend had surgery over 6 yrs ago, Psa went down to <
0.02 after a year, then hovered for a year or two, then began to
rise to 0.7 before last
December. He then had 35 sessions of EBRT over a month to the
area where bladder was joined to urethra. His Psa is now 0.1,
falling. But his tumor was Gleason 6, and the target for RT was
small, so "salvation" RT is more likely to work. I had Gleason
9, aggressive cells,
operation was impossible and I'm in a much worse situation.
There are idiots who suggest Psa testing is all BS, and
treatment does not extend life very much. But I would now be
dead if Psa tests and
treatments had not been available.
While surfing the Internet I just found a .pdf document prepared
by St Vincents Clinic in Sydney about the range of things done
at this clinic.
On page 11, there is a table giving Psa levels at which referral
to a urologist should occur. For men of 60-69, the Psa level is
3.0. My Psa would have
exceeded 3.0 well before 60, and my GP did not send me to a
urologist until Psa went close to 5.0 in 2009, when the tumor
had grown to be inoperable
and with aggressive cells.
So I cannot stress how important it is to be diagnosed early,
which means a biopsy at Psa = 3.0, regardless of other public
health guidelines based on
Psa of 5.0.
Other good reading about radiotherapy, UK
General info about survival rates, USA
From what the Harvard site says, I had a 90% chance of
recurrence of Pca after the "normal" level of EBRT used at
The recurrence of Pca was masked by action of HT, so the
recurrence was seen in three rises of Psa when I ceased HT 18
months after initial RT.
The maximum rate of Psa rise was much faster than 2ng/L per
My vegans diet includes large amounts of raw vegetables and
herbs in salads, and regular quinoa plus almonds boiled
together, tiny amounts of low
fat milk, sugar, salt. I use virgin olive oil in many things,
but it amounts to less than everyone else's fat intake. I don't
eat any junk food, ever,
no chips, deep fried anything, no alcohol, no coffee, no cheese,
and I really don't know anyone else who eats like I do. The ONLY
way ppl get fat is
because they eat too much. Regardless of all other
considerations or invented feel-good justifications or theories
anyone anywhere says about food
and weight, if you stack on more weight beyond what is ideal for
you at 35, ie, when your BMI should have been less than 25, then
you have eaten too much.
I was at my fittest at 42, and weighed 82Kg. I could ride a
bicycle 300km in a day at 28kph average. And I have quite poor
athletic genes. I'm now 84Kg,
and bike speed is now down to 20kph because muscles have
weakened at 69, and I've been chemically castrated for 6 years
now. The weight change
is about -5Kg muscle, +7Kg fat, but I still have BMI about 25.0.
Despite the terrible condition of my knees which need titanium
joints, I still manage to
ride over 100km a week.
I weigh myself naked each morning on electronic scales, and plot
each day's starting weight on a graph in my hand-written journal
I've been doing
for last 55 years. Only one person controls food flow down your
neck, HE IS YOU.
What you eat should be full of vitamins and micro-nutrients. As
we age, we need less food calories, but we need good nutrition.
We have less muscle
weight and we do not need extra protein or extra carbohydrates;
you need less of all things which are calorific.
Breakfast for me is a bowl of chopped raw kale, one raw tomato,
one spoon of olive oil, a sprinkle of turmeric and salt with
iodine, and a pot of
green tea. I don't need to eat between 8am and midday. Lunch is
one vegetable only sandwich and a pot of tea. I found it very
easy to accept the more
frugal existence despite my improved finances and the booming
roar of advertising shouting at me to eat and drink garbage, and
spend my way to
Over eating is poisonous, over spending makes you sad. Dinner is
a salad with many green things and red capsicums etc, and
staple food is boiled
quinoa with some almonds, which need to be cooked to allow their
goodies to be absorbed. I eat maybe 5 small green apples after
dinner to midnight.
Being chemically castrated means I have almost no testosterone
which slows down my metabolism which has me feeling the cold
more. I am unable
to burn excess calories and any slight excess calories become
fat shortly after eating.
For the first 4 years of ADT, erections rarely ever occurred
spontaneously, but any seductive images if females brought Roger
to life and then this all
changed to less often, and signals to Roger became muddled and
only due to a full bladder unlike previous years where this
rarely happened before
treatments.The ADT ruined all my sexual abilities by end of
2014. Whatever pleasurable sensations I could have become so
dulled that any possible
sexual excitement became not worth pursuing, and absence of
testosterone has caused penile atrophy, with fibroids forming in
tissues resulting in erectile
deformity, ie, a dick with bend, and very fragile skin. I have
the kind of dick no female would ever want have anything to do
with. Medical treatment for
prostate cancer always kills Roger.
Most men would not prefer to know the results of long term ADT.
I was highly hetero sexual and capable of pleasing myself or any
female until about
2013, 66yo. I have now accepted that between now and my death it
is highly unlikely any female would ever want to have anything
to do with me at all.
Sex with any F after a certain age becomes a liability - not
enjoyable if the F is likely to be irrationally angry in your
face after a few months, or a few hours.
Although I keep thinking about sex, and having some female
company in my life, it is just my silly dreaming.
Some men would have a penile prosthesis installed, maybe for
$25,000, but in my case I've been radiated and surgery anywhere
in pelvic region is extremely
risky because I could bleed to death due to damaged blood
I have not heard of any man able to describe sex favourably in
terms of how he feels during use of a prosthesis. He would
probably be OK if he had RP surgery
only and had full testosterone, and then it should work well.
But if a man has had ADT for over 4 years, his WHOLE sexuality
is buggered. It is normal that with prolonged testosterone
starvation the Roger gets fibroids in the erection tissues,
maximum erect length will decrease from 140mm to 100mm, and it
likely to have a bend in one direction, often downwards, so
Roger resembles a brass garden tap. it looks ugly, and
penetration would be difficult to maintain, and the feelings of
pleasure all vanish. The skin around the head of Roger become
thin and fragile where it joins the shaft, and a gentle rub
during a jerk off will easily
tear the skin which then takes days to heal. Erections occur
with a full bladder while asleep, and then a man wakes up, and
the erection vanishes after a pee.
Even with an erection brought on by a Little Blue Pill, and In
the presence of a young fully functional female, a man is not
going to do much good, and the female
is likely to flee to a man 30 years younger. Who could blame
The intensity of orgasm declines to zero, and no matter how well
the female performs fellatio, it just becomes a boring waste of
So use of a vibrator may do a better job on the female, but
psychologically, it is bullshit, the young female can only be
satisfied by a real man. There would of
course where the female has huge medical limitations, and is
happy that ANY man is able to be vibrantly intimate with her;
but this is actually very rare.
Usually man of 60 has not got to worry about sex with a wife if
she's close to his age. The decline in a woman's sexuality is
dramatic after about 45, and women
become frail, they cannot and will not try to stay fit, and
sometimes they become emotionally erratic and difficult to love,
let alone make love to.
Welcome to the land of Old Age.
Between 2009 when I was diagnosed and 2016, I rode about 90,000
on a bicycle, and I think I scared away any possible partners I
may have seen. Few women
near my age rode bicycles, and were seriously dismayed I was in
much better health than they were. But then, I had a wife who
left me at age 22, and she
was similarly afflicted by my vibrancy and indestructability. I
was a man they could not root, shoot, or electrocute. Good,
afaiac. Why would I ever let myself be
so physically mediocre and so many others????
I have often thought of marrying my bicycle. It may become
possible in these days of liberation where even gays can marry.
A man could marry his dog maybe.
But marrying a bicycle looks good to me, and why?
Because the man can go for a fukken ride any old time he wants
No back chat, low costs, feels good, and its freedom, and I am
sure the bike loves it too.
Unfortunately, my preaching is to a mass of men who insist that
they destroy themselves by 50 with becoming unfit and
overweight, usually from eating
too much junk food laced with fructose and sucrose, sugar, and
too much alcohol. Their whole life is one of TOO MUCH.
I found all young women soon vamoosed when the reality of the
required co-operation together caused a Female Allergic
Love is such a dreadful threat to so many ppl. I doubt
any doctor has any answer to the not so uncommon malady of where
people look me in the eye
to tell me "I Hate Love". I once read this written in large
painted letters on one of Canberra's cycle paths. I had a female
boarder in my house for 10 years
who one day blurted out "I hate love". She was a fine
responsible tenant to have, but had zero ability to relate to
anyone beyond the non personal.
The fact remains that many ppl hate love. I am often lonely, but
then relieved I am not married to a Female Dragon who finds
fault in all I do, and is like a
millstone around my neck. I gave all women only ONE
CHOICE, to love, and sure, they did for awhile, but then that
stops, and they could not stay, and
they repeated the bullshit on the next male victim. I was always
gentle and understanding when they departed, while wishing to
leave a bootmark on their
arse on the way out the door. I was far to polite to all I met.
17 February 2016
Not much to report since last January. I ceased riding my bike
late last October, and now I am trying to lose the Kg I put on.
Becoming Totally Vegans
might do it, and help prevent the severe effects of inflammation
in my knees. There is theory lurking in minds of
"healthologists" that eating or any
other animal product, eggs, all dairy junk, and cheese junk
triggers the immune response to attack cartilage because of
While young, most of us can eat anything without any worry,
except for fact most ppl eat way too much of everything, and
including excess sugar,
fats and processed carbohydrates. But as age embraces us, it
makes us ache in our joints, and the less we do to encourage
this, the better.
I find this true for myself and without knowing if any of a
myriad number of theories about diet and health are in any way
true, or proven.
Anyway, for me, a fairly strict vegetarian diet is better than
taking any pain killers, and it is natural to me to NEVER EVER
buy ANY JUNK FOOD,
including all meat. Not even Lindt chocolate bars or a monthly
bottle of red wine. Sure they taste nice, but the health
benefits are extremely low,
and whatever chocolate you eat, you can't avoid the huge
fat/sugar content even though the packaging claims "85% pure
cocoa. With wine at 12.5%
alcohol, its much more calorie riddled than green tea. Anyway, I
have slowly gained a Kg over 3 months, and I thought 150grams of
3 times a week was OK, but no, it ain't. I used to ride for 10
hours a week, and had a need for protein, but with being
sedentary, there's just no need
for so much, and I figured I was getting enough protein for
reduced activity. With chemical castration with Lucrin, to
combat Pca, my body has become
unable to burn of any excess calories. Right now, height =
1.845M, weight 85Kg, BMI = 24.9 I should be less. Waist is
I was 1.865M, and weighed 83Kg, BMI 23.8 when I was very fit and
raced on bicycles in 1980s-90s. My waist now measures 100cm, and
in 1990 it
was 90cm or less, and I had maybe 4Kg less fat and 4Kg more
muscle. Even though my BMI was 24 at 42 , I still had a much
higher fat % than the
quickest people I raced against. I was always at a big
disadvantage on hills, and in time trials the slim guys have
less volume so they cut through
the air faster than I could. Naturally, athletic clubs attract
people who are naturally good at sports, and they beat all the
slow coaches like me. Their
ego gets the big lift with wins over those less endowed with
great genes. It was sickening to witness the constant focus on a
win. But occasionally
I did very well in handicap races.
The idea of BMI and waist measurement does not tell us all about
a person. A short weightlifter may have waist above 100cm, and
BMI 30. Weightlifting
may be all he can do, but he can find a happy path in life like
everyone else. We are not all the same. Now as we age, we reduce
muscle weight even if
we keep exercising. About 80% of us get heavier, and lost muscle
is replaced by fat, and BMI can remain the same. So the weight
of muscles I had are
replaced by fat, especially around the gut. There's much more to
grab hold of compared to being 40. We should get LIGHTER as we
age, we all like
to live well, and enjoy activity, like cycling, even though av
speed goes down. I have found it is impossible to get lighter,
and I'm 3Kg heavier than
I was when fittest at age 40, so my fat % has probably doubled.
But at least I don't weigh 100Kg like so many other guys my age.
My limiting factor is now my joints, with knees leading Nature's
charge to reduce my lifestyle. And while my knees ache, so do
hands and wrists and
back; whatever my body is doing, it is having challenges at more
than one place. But after doing anything physical, despite the
aches and pains,
I am glad I did it, and my mind and body both feel better.
Just after last update, about a month ago, I had a bout of heart
fibrillation where HR suddenly went to 120, and irregular, so I
drove to Calvary Hospital
where they kept me there till 1AM. The docs put me on Sotacor,
to slow HR. Within 6 weeks HR went back to normal, and I've now
stopped taking the drug.
But I am taking 100mg of Cartia, (aspirin ) daily, if I
remember, which may be thinning blood slightly to lessen the
hypo-tension I suffer. Hypo-tension is
not to be confused with hypertension. Subsequent heart clinic on
16th Feb looked at heart with Ultrasound, and doc said my heart
looked just great.
I said "Hmm, shame about the Pca, I'll be a good lookin' corpse
on the slab after it kills me".
Two weeks ago I had a mechanic fix the brakes on my 1986 Ford
Laser. He had it for 5 days, because suitable parts were not
This forced me back onto bicycle, and I rode 100km last week,
with 15km ride up the hill to the heart clinic. I figured I'd
make it, and all went fine, if I
died on the way, so be it. Doc was not alarmed, but more
confident I'd be OK. A bloke of 30 overtook me up steepest hill
and maybe he was trying,
but then I caught and passed him just before the crest. Heck,
I'd given the yung turk a 38year advantage, so I realized I
wasn't near death just yet.
Don't ask me what caused the bout of HR bothers, but I suspect
it was eating a few dark red carrots; I'd heard dark red vegies
are very high in a
very good anti oxidant. Maybe too good. I can't be sure. I've
only ever had it once before in 2004, after coming off VIOXX
which later got banned
because it killed ppl with heart problems.
Knees didn't ache later as a result of the rides, like they did
back in October. Not as bad as in 2004. We need to keep
January 7, 2016. Prostate cancer report.
My last Psa test was 18 Dec 2015, and I visit my oncologist
later today, 7 January 2016. ADT hormone therapy continues with
Psa is not going
down as far or as fast as it has during past applications of
Eligard and Lucrin.
The graph gives my Psa history which explains how my treatment
for prostate cancer has proceeded with ADT and Radiation. My
present is that Psa is not being held down to the initial levels
achieved when ADT began in April 2010. Since then, I've had two
pauses from ADT,
and during both the Psa rapidly rose indicating that radiation
did not have much effect on cancer cells. The underlying value
of Psa from 2011 to
present 2016 shows that it is slowly rising, and testosterone is
not being fully suppressed by Lucrin injections.
I can see that if the slow rate of increase of my Psa continues,
it probably will indicate Pca is going to spread & kill. Its
what cancer does.
Use of alternative therapy such as apricot kernels, about 24mg
per day of amygdalin seemed to have zero effect on Psa over a
long time of intake.
Cannabis oil with low THC, high CBD seems to have done nothing
between Feb 2015 and October 2015. My daily dose began at 0.2mg,
a very tiny
amount, but it was enough to get a strong high. Sensitivity
slowly reduced and at end of period I could take 5mg. I stopped
taking it Oct 2015, and
experienced no withdrawal effects. It has been totally non
addictive, and gave me good inner calm feeling about life.
Websites promoting cannabis for cancer cures should be
considered snake oil treatments until proven otherwise.
There have been NO studies of social groups of ppl who regularly
smoke or ingest cannabis products, such as those living in
Jamaica et all. I might guess
that any studies might show there are no reductions in cancer
rates where it is widely consumed and in tropical regions where
it grows so easily it is hard
for authorities to eliminate. I might add that prostate
cancer rates are worst for those with dark african genes, and
there is considerable variation in rates
for different races or genetic blocks of men. There is no way
yet for a man to alter his genetic make up to not endure
prostate cancer. Some websites
promoting cannabis oil say you need to take a GRAM a day but
this seems utterly wrong. One gram = 1,000 mg, and has volume =
800 cubic millimetres.
I doubt I ever took more than 6 cubic millimetres a day, a small
drop on the end of a little metal spatula I made. So, assuming I
averaged 5 mg a day
for 270 days in 9 months, the maximum I would have used was is
1,350 mg, or just over 1.35grams, or less than 2 cubic
centimetres, 2cc, and not much
from initial supply of about 20cc, or 16 grams, which was
obtained by my friend from about 300 grams of harvested Sativa
heads. The oil yield rate is
extremely low compared to rate for the Indica variety that has
been subject to genetic selection since 1970s when Indica began
to be grown commercially
by hard nosed arsolic criminals who want the product to give a
huge high for a small amount which is cheaper to grow. The
Indica sold in most underground
sales is "skunk" and very high in THC which has psychotic large
effects so beloved by those subject to becoming hooked to drugs.
There is a very low % of CBD oils in skunk, and its these oils
which give the calming effect, and boost to immune system, if
there is any to be had.
It turns out that our bodies produce CBD chemicals naturally for
immune system and calming function. Therefore skunk sold on the
streets is having a
very bad effect on the hoards of stupid young people who
foolishly believe they can ease the pain of their existence by
getting high, and the then so many
suffer schizophrenia or other disorders which make then useless
for anything, unemployable, and dependent on welfare. I should
know, because I have
a nephew who succumbed to mental illness while trying to keep up
with his 2 older brothers, one of whom sold pot to classmates at
age 12, and who went
on to become a bankrupt at 23, after dabbling with heroine given
to him by a girl friend. The other brother dabbled in cocaine.
These three young ppl had
Shit For Brains in the formative years; nothing could be done to
get them on the straight and narrow. They were always allergic
to hard work.
So I really do know about cannabis and its effects. My friend
who prepared my oil for me did not dilute the oil at all, and in
fact it was a dark brown grease,
unable to flow.
Had I had tried to take 1 gram of the oil I had daily, I would
probably have become extremely ill. It may have had such a huge
psychic effect that I could
have a fall or other accident in the house and done myself an
injury. It may have been fatal. Websites promoting cannabis oil
for health say the high from
THC need not be strong, just be present, and still allow you to
live independently without risk of accidents, despite the
feeling of "being remote" while
cooking, or watching TV. The guys promoting "Medical Cannabis"
will insist on telling ppl they need 1 gram a day. The density
of oil = 0.8 grams per
cubic centimeter.Therefore 1 gram of oil = 1 / 0.8 = 1.25cubic
centimeters = 1,250 cubic millimeters = 1,250ml.
The guys selling oil know that ppl only need 2.5ml per day of
oil to get a high especially with skunk or a new user taking it
for medical reasons.
I have seen websites saying you need 60 grams or 1 gram a day
for 2 months for a cancer cure. The active ingredient of raw oil
60 x 2.5ml = 150ml = 0.15cc. To this they add 75cc of canola or
olive oil, so the bottle contains
75.15cc of diluted oil.
They have diluted the product by a factor of 1/500. The price is
only $10,000 - to save your life. The price they get for the raw
THD ingredient in
medical cannabis paid by gullible non-street wize ppl is far
better than the price ppl pay for the same amount of THC to ppl
who need to smoke 2
bongs a day. There is no evidence cannabis oil cures cancer.
With the oil my friend provided, I certainly got a high always
with less than 5mg.
It seemed so "strong" at times that it is strictly a
stay-at-home substance, you MUST NOT tempt fate by driving a
car, or doing anything in a workshop.
So this "therapy" is a "mind zonker", even with this variety of
Sativa which is just a natural wild variety which has not been
genetically selected to
make the THC much higher and CBD lower. The Sativa oil had me
"good for nothing a hour after taking it." I found I never ever
had feelings of paranoia
which are the hallmarks of psychologically damaging varieties of
Indica cannabis which are very high in THC and with hardly any
should be avoided at all costs, especially by teenagers who can
succumb to schizophrenia and other mental illnesses. Natural
Sativa variety is
low yield, low THC. And anyone 16 who reads this will not have
the slightest idea about what he is buying, and what I say here
is all bullshit.
There are ppl very prone to addiction to many things; 80% of
alcohol is purchased by 15% of the population, 80% of gambling
is by 10% of population
who are problem gamblers. Studies would show 80% of recreational
use of drugs is by 15% of population, with a good number
Tobacco was once smoked by 50% of everyone I knew, with probably
25% smoking twice as much as the other 25%. I once smoked up to
cigarettes a day, then said I'd give up, cold turkey, at age 34,
when a GF at that time said I stunk like a chimney.
I did give up, cold turkey, but GF went through usual cycle of
Love, fading to co-existance, then Hate, and off she went to
roam and slut around
world - again - like the year before, in between the years of
being employed as a primary school teacher where she could not
last longer than a year
without getting fed up, and needing to piss off. This was
typical of the many useless dreadful young women I met who could
not settle down with
anyone. Their efforts to
relate to me were 120% un-respectable. Sex wasn't especially
wonderful, just sex. I don't have an addictive personality, and
cannot be addicted
to fraudulent lovers, grog, cannabis or anything else at all.
The cannabis oil had me sleeping better, calmer, less worried,
less anxious, and being
more able to accept my dismal future. I didn't like being forced
off the bicycle with knee pains. There is nothing nice about
declining with age and
slowly losing every ability all ppl under 50 take for granted.
Aging means everything known and practiced as "human life"
becomes very limited,
and denied to ppl when they get older.
12 October 2015.
HT was restarted 1 August 2015 following Psa 3.3 level 10 July.
Psa is going down again.
13 July 2015. Since February 2015 little
has changed with my health, except that my knees are beginning
to wear out and I cannot ride a bicycle
as fast. But I have finally given up any desire to go fast as I
could all the time. My Psa has risen from about 0.4 in Feb to
3.3 at 10th July 2015,
so you can see that there is a very fast doubling time. An
acceptable doubling time is say 10 years, so from 50 it goes
from 1.0 to 2.0 at 60, then 4.0
at 70, and 8.0 at 80, and maybe you last until 90.
I have a cousin of 70 who has Psa = 0.3. There is a good chance
he had a lower testosterone level than I did. In my case, I have
hormone therapy after February and its effect has down over 3
months and my body has resumed testosterone production. Prostate
normally generate a high Psa marker chemical in blood due to
testosterone presence, and it does this even when no cancer is
present. Normal range
of Psa on pathology results is cited to be from 0.3 to 5.5ug/mL
but this is misleading because what is normal when you have been
I've known men whose Psa was 18 but there was no Pca. Well, not
yet. So "Normal" is a silly word, and 0.7 at 40 and 1.0 at 60
should be the standard.
THE DOUBLING TIME of the Psa level is much more important that
the actual level if the level is "normal." I had no surgery. I
was radiated, so the
prostate gland is just sitting there like an internal crouching
demon ready to mutate and grow uncontrollably. So whatever
Psa chemical is produced,
it could be from cancer cells, or from normal cells. But not one
doctor knows the exact state of my prostate gland or if there is
They are only guided by Psa level and its change and the
Having low testosterone < 0.5 ( normal range 8 to 38units )
in most males will reduce Psa to less than 0.5. The pause in HT
is supposed to do my body
good to allow some return to having testosterone and to see if
the EBRT in 2010 has worked over time.
This is the second pause in HT I've had, and this time the
mental change has been negligible. My bike speed has reduced and
general daily desire for
sex and ability to "fix the itch" has not returned. Well, maybe
it is mental, because at 68, there is not a woman alive who'd
ever want to be with me
in any way. I have moved to the age where I am naturally
repulsive to 99% of sheilas. Most are far too polite to mention
this fact, because politeness
is something many of them discover is the key to a peaceful
sexless life without arguments with men, usually over money, and
getting their own way.
It is maybe 20 years since anyone actually touched me with care,
except for medical professionals paid over $100,000 pa. Its OK,
I just handle it,
rather like my mum of 98, who hasn't had a man touch her since
she was 55. I have become polite enough to enjoy women's company
having them feel frightened, angry, or sexually aroused when it
is not wanted.
The Psa rise during 2015 is just like what occurred in early
2012, indicating cancer tumor is alive and well, and intent on
See the graph above for Psa after January 2008.
Psa rode from 4.3 to 6.3. I was diagnosed after biopsy in late
Dec 2009 with Gleason 9, aggressive cell type, young man's type
of cancer, prostate
gland was 3 times normal volume. Biopsy gave 9 live samples of 9
taken through rectum wall, a very painful experience with no
Open surgery was attempted April 2010, but abandoned after
cutting me open. Cancer had just advanced beyond capsule but had
HT with Casudex followed by Eligard was commenced, and In Dec
2010 I had 35 RT sessions when Pg had been shrunk to smaller
size due to HT.
Eligard was injected once every 3months causing temporary
chemical castration. I am presently (12 October 2015 ) back
under effects of re-started HT
with Lucrin injections. Psa has fallen, but probably I will
never lower it to the 0.08 back in April 2012.
The effect of ceasing and re-starting HT shows Psa rise and fall
similar to between 2012 to 2013.
The latest peaking rise in Psa indicates it is likely the
radiation treatment has done little if anything to prevent
prostate cancer from finally killing me even
if I remain on HT for however many years Unkel Nature has
allotted to me. The graph shows an underlying rise in Psa at
nadirs during HT, and doubling
time from August 2013 to April 2015 = 16 months. From this I
could say that Psa in 6.6 years time might be 32, aged about 75,
and I may not be very well.
The idea of living to my 90s would depend on a miracle cure.
There are some miracle cures one hears about, most one hears or
reads cannot be taken seriously. There's a drug called Keytruda
which works for
melanoma well, its now available on PBS scheme in Oz. It is said
to work on other cancer types including Pca, but then it is new,
and trial results are
yet to be finished, so I doubt my oncologist is going to
prescribe it for me in 5 weeks when he gets back from his winter
holiday. So knowing what the
latest cure or treatment may be is fine, but so often we hear BS
about something that won't help us in time.
Comments on the graph explain the issues for anyone interested
including medical professionals. It should be viewed on a nice
BIG SCREEN, and not a
stupid little i-pad or phone. I may be the only man who has
published a graph of his Psa levels during treatment for
Last July 10 2015, 3.3.Previous Psa June 2
The 2015 Psa rise is similar to rise in 2012 when I paused for 6
months from HT injections.
I will start again with HT next week with Casodex tablets
followed by Lucrin injections to reduce testosterone to low
I have no cause for optimism, and alternative remedies such as
apricot kernels and daily cannabis oil for last 5 months have
done absolutely nothing
to change the shape of the curve for Psa rise. Had my Psa risen
to only 1.5 with a then begun to fall, the HT + RT could have
been said to work, but
as I see it, its only a matter of time and I would bet that when
I re-start HT the Psa will not drop drop to levels on early
6 February, 2015.
After an aborted attempt to remove my PG surgically in 2010, I
was given HT for 2 years with a full course of 35 RT in Dec
2010. After 2 years of HT
Psa went to a low 0.08. I stopped HT, but by May 2013 Psa
climbed to 8.0 and free Psa indicated Pca was progressing. I
started a second round of
HT in early June 2013. By the time the effects of the last
injection of Lucrin ceased by about April 2015, I will have had
HT for 22 months.
The Psa nadir during the second round of HT has been 0.2 in
April 2014. Psa has risen slightly to 0.36 last month,
indicating a doubling time of 1 year.
This does not mean the HT has become ineffective. The PG cells I
have are radiation affected and some may be healthy, and these
produce a Psa
reading along with any cancer cells, and it is difficult to
determine where the source of Psa really is, because the HT
reduces Psa produced by both
healthy and cancer cells - while the HT it remains effective.
During my last visit to my oncologist at CH, he and I decided to
quit the HT and watch the total Psa to see if it rises rapidly
and determine free Psa
which will indicate if the cancer is progressing. The oncologist
says a pause in HT to allow a return of testosterone production
will be good for me.
If total Psa remains below 1.0 then it may be considered the Pca
is in remission but that if it rises above 1.0 - and rapidly -
then I will have to return to HT.
I will not have a Lucrin injection at end of this month when the
next injection was due. I might assume my testosterone will
begin to rise in about April,
and I will have a Psa test in late May, just before I see my
oncologist in early June.
I may need to remain chemically castrated for the rest of my
Castration affects men in a variety of ways, and there are many
myths. There is no feminizing apart from some body hair
reduction. Drugs like Lucrin or
Eligard which suppress testosterone production do not cause
feminizing effect like female estrogen, sometimes given as HT.
So I shall not grow breasts
any time soon, or hear rise in pitch of voice etc. I doubt I
suffer depression, and I can keep my weight under control, now
83Kg, with BMI = 24.8.
But of course I am aging, and although I am same weight as I was
when at my fittest when 41, some muscle has been replaced by fat
nothing I can do to stop this while on HT and and under effects
of zelodronic acid to prevent bone thinning.
Unfortunately, many men find themselves depressed by aging, and
so many cannot ever control eating, drinking, laziness, and
social habits which
are all bad. I'm the exception. Many men blame weight gain and
the and drift to other illnesses on medication, and by 60 they
become ugly caricatures
of what they once were, and they give up on themselves. Their
wives also to the same thing, and its no wonder depression is so
desire for vibrant intimacy has become a thing of the past.
It's been 37 years since I was married, and I'm still looking
for a partner and I definitely can function sexually. So while
single, I have nobody to displease
by getting old and getting a few health problems. I find most
ppl avoid relationships like the plague after age 45, but I'd
welcome one. The difficulty is in
"chemistry", and most women have zero desire for a man after
their menopause, ie, they have "paused from men", and no amount
of chemistry, charisma,
or money, care or anything else will make any relationship
possible. There are thousands of females over 30 advertising on
dating sites wanting men. Let us
suppose 50% are bogus creations by website "managers", ie,
arsole scamsters. The remaining 50% run a mile if a man does
suggest a meeting; they say
they want a man, but most are quite incapable of following
through with active pursuit accompanied by watchful eye to sort
out who is or is not a member
of the army of men from Arsolia or Bastardia where all manner of
fellows really want to be euthanized tomorrow.
I continue to cycle a constant average of at least 200km per
week to keep fit. Very few fellows overtake me during my rides.
There seem to be virtually no
men my age still cycling. I rarely EVER see any woman over 40 on
a bike, and 95% of all the females on bikes don't want anything
to do with me;
I am an old fart, and they cannot keep up to my speed, despite
them being perhaps 40 years younger, and me having bad knees and
lack of speed due
to muscle weakness aided by chemical castration.
I probably have high willpower levels, so after July 2014 I gave
up wine and chocolate and last Xmas gave up having a cookie
during each cafe stop
while out on the bike. The ONLY way a man or woman can prevent
fatness by eating less calories than consumed by exercize, ALL
until they die. Between 1993 and 2006 I stopped cycling and
doing building work due to knee pain - I have bad knees.
So during 13 years I put on 19Kg, which works out to 2.7 grams
per day. This seems like such a tiny weight gain, and ppl hate
to think something so
small matters so much, but while living a sedentary life you
just have to reduce calories far more than one might think is
I have GFE genes - Get Fat Easy. The only way for me to control
weight is to weigh myself EVERY morning using electronic scales
able to resolve
to nearest 0.1Kg at least. Then I plot the graph of weight in my
daily diary, and if any jump in weight occurs, I fast, and ride
a a bit. Over 2 months you
will see variations in weight of +/- 0.1Kg, but you can SEE the
TREND of your weight, and read the average weight for each
I allow a Supreme Salad Sandwich every day at my favorite
restaurant, the "Siam Twist" at Hackett in Canberra.
Do not believe the poor
reviews about the Siam Twist; it is luxuriously pleasant.
With two large cappuccinos, its under $16, which I can afford.
Once a week I have a Thai dish, Duck Salad or a Laksa with
noodles and tofu in winter.
I enjoy occasional male company and newspapers to read, very
pleasant staff, and so I enjoy being away from home.
My knee osteo arthritis is beginning to limit what I do on my
bicycle, so as long as I don't ride more than 300km within a
week I am OK. I am not yet
begging an orthopedic surgeon to install titanium knee
prosthesis to both knees. It may happen, but I'd have to wait a
year before getting the operation
and my cancer progress may prevent the operation if the docs
think I will die sooner rather than later. Right now, the
oncologist does not think my
prostate cancer is spreading. I don't need to ever
walk further than 200M ( carpark to movie theatre ). I doubt
I'll ever need to walk further, say, along a
beach at sunset with a beloved. If I try walking on sand my
ankle injury from a motorcycle prang at age 19 has me completely
Women dream of romance and expensive resorts, but they need to
be able to be happy right here and right now, and then all days
following the day you
meet them. They should never need to travel anywhere, but I make
an exception for coming out with me on a ride. Like many with
leg injuries from a
past life, I can cycle OK. A bicycle is just a wheel chair with
one wheel in front of the other.
For last few months I ate an average of 40 apricot kernels a day
as alternative therapy which is claimed to stop cancer spread. I
doubt its having the
slightest effect but then it seems a benign dietary supplement,
although they do cause some bowel irritation. I have have a
friend with a HERB which
I will begin to take soon; I cannot say more about it, but if it
appears to lower Psa after going off HT, I'll let you all know
I now know of 3 local men who had what seemed to be successful
surgery giving extremely low Psa. All have complete ED, and most
continence. After a few years of having Psa < 0.02, Psa rose,
so one had additional surgery to remove his bladder and have an
external bag fitted,
another had all the RT that I had, and another has Psa of 0.05
after 4 years and he probably will try HT and or RT, and he much
fears the Psa rise
at age 75. So even if the cancer is removed surgically, some
small amount of prostate gland cells may be left behind, and
they too may eventually
become cancerous, if they were not already at time of surgery.
In my case surgery was not possible despite a fairly low Psa at
diagnosis in 2009. I still have a prostate gland which is
probably much affected by
RT, but exact status of cancer cells is quite unknowable.
Therefore it seems pointless to worry too much about a Psa which
is 10 times the level
which alarms other men so much after they have had surgery. I
expect my Pca to kill me; the doctors said they just don't have
Life expectancy for a man in Oz is now 84 years, but that just
means very many die well before they turn 84.....Sure, a few
live to 104, but I don't
expect to one of them.
For anything before 6 February 2015 :- Past history.
My interest in road cycling now reduced, and not much to say at
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